The question “How has 7cm of tumour been missed on a mammogram?” was what started me on my journey to setting up LBCUK.

I was diagnosed with Lobular Carcinoma in Situ, a risk factor for breast cancer, in 2014, Stage 2 invasive lobular breast cancer in 2017 and had a local recurrence in the middle of the pandemic in 2020. You can find out more about my story here.

Staying mentally healthy has become a huge part of my life, and I can be found playing outdoors with my partner Shell and dog Woody ideally in, on or under the water. I work in the cultural sector and have set up and run charities, festivals, and events over the past 30 years, and LBCUK is a new challenge.

I’m definitely a doer and on learning more about lobular breast cancer, something I’d never previously heard of, I knew that things had to change in the UK and internationally to stop women from dying, and having life changing impacts from the treatments, due to lobular breast cancer. By setting up LBCUK with these incredible women, we are a step closer to making this a reality.