Share Your Story
Your Personal Stories matter
Our personal stories help to raise awareness of lobular breast cancer and help us feel less alone as we share our experiences.
By sharing your story, you can help us in our vital work to make real changes for people affected by lobular breast cancer. There are many opportunities for sharing stories across our social media, with the media, to enhance our campaigning or as part of our research.
We cannot promise that everyone’s story will be highlighted in our work, but we want to hear from as many different people as possible.
If you are interested in sharing your own experiences of a lobular breast cancer diagnosis, please contact us on info@lobularbreastcancer.org.uk and we will get in touch.
Your Stories
“I found out through my histology report that I had Lobular.”
Brian is 62 and lives in Newcastle upon Tyne. He has been involved with The Men’s Virtual Meet Up (VMU), which is a monthly virtual meet-up for men with breast cancer, since 2024. Whilst we know Lobular is rare in men, each year there are around 8 men being diagnosed...
Lisa’s Lobular story: “I look back on my experience so far and wish there was more understanding about Lobular Breast Cancer.”
Lisa is 49 years old and lives in the West Midlands. She has been married for 25 years and has two sons aged 18 and 22. I used to work as a Teaching Assistant but became a stay-at-home mom after the birth of my first son. But for the last 4 years, I’ve been working as...
Georgie’s story: “Being so young and not knowing anyone my age who had been through breast cancer, I found it incredibly hard.”
Georgie lives in the Cotswolds and has worked as a nanny for three young boys for the past six years. She has been with her now fiancé for 10 years and plays for a local softball team. In June 2024, aged 29, I noticed a change in my right nipple. My cousin had just...
Nicki’s Lobular story: “Routine breast screening has literally saved my life”
Nicki, a healthcare professional, shares her story of being diagnosed with Lobular Breast Cancer aged 54, the choices she has had to make regarding treatment, and how she is now in training for a 10k run. Following a routine breast screening, I received an appointment...
“I had no symptoms at all when diagnosed with Lobular”
"Without family and friends, this experience would have been very difficult", says Anwen (pictured centre) about her Lobular Breast Cancer diagnosis. "I'm doing well but didn't realise how difficult everyday tasks could be without a breast as simple tasks can be...
Vikki does a hop & a skip for Lobular on a fire walk
“I had Lobular that was totally clear on the mammogram and the ultrasound. Also I had it in my lymph nodes which was not detected. Quite shocking when it was 8cm x 7cm” Vikki Groom, single mum of girls Dacey and Lucia, had just started a new job when she was diagnosed...
My experience of abemaciclib
Caroline Streatfield, who was diagnosed with lobular breast cancer in October 2021, shares her experiences of taking abemaciclib (Verzenio), newly approved by the National institute for Health and Care Excellence (NICE). Following the results of the MonarchE trial,...