Research is needed to make changes in how Lobular Breast Cancer is understood, diagnosed, treated and monitored.
At LBCUK, we our committed to working in collaboration with and supporting researchers and medical institutions across the UK and internationally. We do this through our role as Patient Advocates, and have worked with clinicians and researchers at Kings College London, the University of Edinburgh, the Insitiute of Cancer Research, the Royal Marsden, Leuven University and the University of Pittsburgh.
In partnership with De Montfort University, we have also begun our own research to specifically understand and identify the needs and concerns of people diagnosed with Lobular in the UK.
Rather than duplicate resources, we are working with our international partner Lobular Breast Cancer Alliance in the United States. You can access their comprehensive research library featuring over 200 studies on lobular breast cancer from around the world.
Our Research Projects
At LBCUK, we are working to identify the needs of people diagnosed with Lobular in the UK, especially in relation to the psychological impacts of a Lobular diagnosis. We have developed two studies working in partnership with De Montfort University that focus on patient needs and concerns following diagnosis.
This study is looking at Lobular patient needs and prioritises their concerns in relation to treatment and research. This study has closed for recruitment.
Missed Cancers: Lobular Breast Cancer that has been missed on screening
With a focus on patient wellbeing, this study, led by De Montfort University MA student Victoria Rake, aims to find out the experience of having cancer that has been missed on mammogram.