Research
Research
Research is needed to make changes in how Lobular Breast Cancer is understood, diagnosed, treated and monitored.
At LBCUK, we our committed to working in collaboration with and supporting researchers and medical institutions across the UK and internationally. We do this through our role as Patient Advocates, and have worked with clinicians and researchers at Kings College London, the University of Edinburgh, the Insitiute of Cancer Research, the Royal Marsden, Leuven University and the University of Pittsburgh.
In partnership with De Montfort University, we have also begun our own research to specifically understand and identify the needs and concerns of people diagnosed with Lobular in the UK.
Research Library
Our Research Projects
At LBCUK, we are working to identify the needs of people diagnosed with Lobular in the UK, especially in relation to the psychological impacts of a Lobular diagnosis. We have developed two studies working in partnership with De Montfort University that focus on patient needs and concerns following diagnosis.
Help Shape Research on Lobular Breast Cancer Awareness & Help-Seeking
In partnership with the University of Aberdeen, we are conducting a research project to understand how Black African and Black Caribbean women notice, interpret, and respond to subtle (non-lump) breast changes linked to Lobular Breast Cancer.
Research study: breast screening and symptom recognition.
This study explores how previous normal mammogram results influenced how women later diagnosed with Invasive Lobular Carcinoma understood symptoms and decided to seek medical help.
Take Part In A Trial
As part of your treatment for Lobular Breast Cancer, you may be offered the opportunity to take part in a trial.
Trials are medical research studies that involve people. They aim to find out if treatments work well and safely on patients. They are the best way to find out the most effective ways to prevent and treat disease, and potentially prevent people getting ill.
Whilst other trials may not be specific for Lobular, they may still be suitable for you as a patient. For example, 90% of Lobular patients have tumours that are ER+ or driven by oestrogen. As a result, a wider breast cancer trial for ER+ breast cancer patients may be suitable for you.
Ask your medical team if there are currently any trials that could be appropriate for you, or ask us here at LBCUK.
If you have metastatic disease, charity Make Seconds Count provides a free support service to help you find relevant clinical trials that you might wish to get involved with.
There are currently no specific drug trials for Lobular Breast Cancer in the UK, but most breast cancer trials have historically and will continue to include patients with Lobular Breast Cancer.
Current International Trials
To find out about other specific trials for Lobular Breast Cancer happening around the world visit our partner Lobular Breast Cancer Alliance where they have provided a database of all of the Lobular trials taking place around the world.