You most probably had a mammogram and ultrasound for your initial diagnosis. An MRI is likely to have been used to determine the extent of your tumour to help with surgical decisions. Not all medical centres use Tomosynthesis (3D mammogram). It is an advanced form of mammogram that produces three dimensional images

Monitoring in the UK after surgery or initial treatment is an annual mammogram to check for recurrence in your remaining breast, if you had a mastectomy, or both breasts if you had a lumpectomy.

Whilst not currently the standard of treatment in the UK, if you were not initially diagnosed by mammogram or a large extent of your tumour was not clear on mammogram, you could ask for a different form of supplementary imaging such as ultrasound or breast MRI.  This could help to reduce any concerns you may have about tumours not being visible on mammograms.

Studies have shown that MRI is superior to conventional imaging for detecting Lobular Breast Cancer, especially for individuals who also have dense breast tissue (Johnson, K., Sarma, D. & Hwang, E.S. Lobular breast cancer series: imaging. Breast Cancer Res 17, 94 (2015). https://doi.org/10.1186/s13058-015-0605-0)

If all or part of your Lobular tumour was missed on mammogram you may want to ask for on-going annual MRI monitoring too. To help you with this ask, we have produced a template letter for you, containing some of the latest scientific evidence about Lobular and MRIs, to send to your medical team if you wish to ask for this monitoring in the future. The letter can be downloaded here. Please contact us if you have any further questions or concerns about this.

As this is not part of current treatment guidelines, your breast centre may not approve this, so please consider if this is the right action for you to take. As mammograms can also identify any potential local recurrence, or the rare chance of a different type of breast cancer,  any supplementary imaging would be alongside your annual mammogram too not instead of.

For women with a history of Lobular Breast Cancer, having dense breast tissue can also make finding a recurrence more difficult. Screening Ultrasound and Tomosynthesis (3-D mammography) are both imaging alternatives that increase cancer detection in all women with dense breasts. The American College of Radiology has a fact sheet on dense breasts and imaging (not Lobular specific) and issued recommendations for MRI in particular cases for women with dense breast tissue.