Working together we can all live well
Working together we can all live well
We work to save more lives by unlocking the challenge that is Lobular Breast Cancer
Not Always a Lump
Due to its unique growth pattern, Lobular Breast Cancer rarely forms a lump, making it hard to detect on scans.
Despite making up 15% of all breast cancers diagnosed, Lobular is under-studied and rarely recognised as a distinct and different disease.
What we do
We are patients, advocates, scientists, family members, friends, and volunteers who are united by a common goal: to change the landscape for Lobular Breast Cancer in the UK.
Together we are are working to:
- raise knowledge and understanding of Lobular Breast Cancer
- advocate for more research into this distinct disease
- provide women with the knowledge and tools to advocate for themselves
- ensure earlier and more accurate detection
- change the treatment guidelines so that Lobular is treated as a distinct disease
Information and Resources
Find reliable information and practical resources to help you better understand Lobular Breast Cancer.
Our free downloads are designed to support patients, families, and healthcare teams at different stages of diagnosis and treatment.
All resources are free to download and share.
Latest News
LBCUK’s first MP drop-in is a success
On Wednesday 4 March 2026, LBCUK staff, trustees, patient advocates and researchers hosted an MP drop-in at Portcullis House in Westminster. The Rt Hon Helen Hayes, MP for Dulwich and West Norwood, sponsored the event and was the first to drop in and see us. Helen’s...
Ben raises over £13,600 from Brighton Half Marathon
Ben's wife Annabel was diagnosed with Lobular Breast Cancer a year after she was told her lumps were fibrous cysts at her initial scan. Annabel is currently undergoing treatment but she is back at work, teaching, and doing really well.On 1 March Ben took on the...
Run the 2027 London Marathon for LBCUK
The TCS London Marathon is one of the most prestigious marathons in the world - would you like the opportunity to run for LBCUK? Our Interim CEO Claire Turner will be taking on the London Marathon on 25 April 2027 to raise funds for LBCUK and we're looking for two...
Our Lobular Stories
Ruth shares her experience of dealing with a Secondary Lobular Breast Cancer diagnosis
Susan was diagnosed with Stage 3 HER2+ Pleomorphic Lobular Breast Cancer
Elaine was diagnosed with Lobular Breast Cancer in 2020 at the age of 38
together we can do so much”
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