Working together we can all live well 

Working together we can all live well 

Not Always a Lump

Due to its unique growth pattern, lobular breast cancer rarely forms a lump, making it hard to detect on scans.

Despite making up 15% of all breast cancers diagnosed, lobular is under-studied and rarely recognised as a distinct and different disease.

Our Stories

Ruth shares her experience of dealing with a Secondary Lobular Breast Cancer diagnosis

Darlaine was diagnosed with Stage 2 lobular breast cancer.

After pushing for additional screening Emma was diagnosed with Stage 3 lobular breast cancer

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“Alone we can do so little;
together we can do so much”

The Key Challenges
We Face

  • Lobular breast cancer is a distinct disease that behaves differently from other breast cancers
  • Lobular breast cancer tumours grow more like a spider’s web in straight lines and rarely form a lump, making it much harder to see on scans. As a result we are often diagnosed at a more advanced stage of the disease.
  • Lobular breast cancer and how it responds to treatment is not properly understood. It is an under-researched disease.
  • There is a lack of data about lobular breast cancer here in the UK that makes it hard to understand its full extent and behaviour.
  • Many people aren’t told that they have lobular breast cancer on diagnosis, simply breast cancer, making it hard for them to ask for the right treatment.
  • Not all medical professionals understand lobular breast cancer, how it is a distinct disease with its own characteristics, and how it responds differently to treatment.

What do Breast Care Nurses do?

“We are there…”

Breast Care Nurses play a pivotal role in your treatment from first diagnosis through to post-treatment support.

Lottie Milns, Senior Specialist Breast Care Nurse, talks with BBC News’ Presenter Jane Hill about how she works with her patients and the current understanding about lobular.

Jane was diagnosed with lobular breast cancer in 2018.

Lottie works at The Nightingale Centre, Wythenshawe Hospital, Manchester and is on our Scientific & Medical Advisory Board. 

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Lobular Breast Cancer UK is a registered charity in England and Wales No. 1191402 Registered office: 83 Ducie Street, Manchester M1 2JQ