Working together we can all live well
Working together we can all live well
Not Always a Lump
Despite making up 15% of all breast cancers diagnosed, lobular is under-studied and rarely recognised as a distinct and different disease.
Our Stories
Ruth shares her experience of dealing with a Secondary Lobular Breast Cancer diagnosis
Susan was diagnosed with Stage 3 HER2+ Pleomorphic lobular breast cancer
Elaine was diagnosed with lobular breast cancer in 2020 at the age of 38
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together we can do so much”
The Key Challenges
We Face
- Lobular breast cancer is a distinct disease that behaves differently from other breast cancers
- Lobular breast cancer tumours grow more like a spider’s web in straight lines and rarely form a lump, making it much harder to see on scans. As a result we are often diagnosed at a more advanced stage of the disease.
- Lobular breast cancer and how it responds to treatment is not properly understood. It is an under-researched disease.
- There is a lack of data about lobular breast cancer here in the UK that makes it hard to understand its full extent and behaviour.
- Many people aren’t told that they have lobular breast cancer on diagnosis, simply breast cancer, making it hard for them to ask for the right treatment.
- Not all medical professionals understand lobular breast cancer, how it is a distinct disease with its own characteristics, and how it responds differently to treatment.
What is lobular breast cancer?
Having a breast cancer diagnosis is traumatic enough without then hearing that you have a type of breast cancer you have never heard of.
Soujanya Gadde, Consultant Radiologist, talks with BBC News’ Presenter Jane Hill about lobular breast cancer, what it is, how it behaves differently and what you can do after diagnosis.
Soujanya works at The Nightingale Centre, Wythenshawe Hospital, Manchester and is on our Scientific & Medical Advisory Board.
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Lobular Breast Cancer UK is a registered charity in England and Wales No. 1191402 Registered office: 83 Ducie Street, Manchester M1 2JQ