Working together we can all live well 

Working together we can all live well 

22 a Day

Every day, 22 people in the UK are told that they have lobular breast cancer, that’s the equivalent of two football teams or two hockey teams.

15% of all breast cancers diagnosed are lobular.

Our Stories

Ruth shares her experience of dealing with a Secondary Lobular Breast Cancer diagnosis

Danni was diagnosed with lobular in both breasts, which was initially missed on mammogram

Darlaine had mixed lobular, including pleomorphic cells

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“Alone we can do so little;
together we can do so much”

The Key Challenges
We Face

  • Lobular breast cancer is a distinct disease that behaves differently from other breast cancers
  • Lobular breast cancer tumours grow more like a spider’s web in straight lines and rarely form a lump, making it much harder to see on scans. As a result we are often diagnosed at a more advanced stage of the disease.
  • Lobular breast cancer and how it responds to treatment is not properly understood. It is an under-researched disease.
  • There is a lack of data about lobular breast cancer here in the UK that makes it hard to understand its full extent and behaviour.
  • Many people aren’t told that they have lobular breast cancer on diagnosis, simply breast cancer, making it hard for them to ask for the right treatment.
  • Not all medical professionals understand lobular breast cancer, how it is a distinct disease with its own characteristics, and how it responds differently to treatment.

Get Involved With Lobular Research

Help us to identify the most pressing concerns of people diagnosed with lobular breast cancer in the UK meeting our commitment to putting patients first in all we do at LBCUK.

Two of our Trustees Dr Helen Coultard and Dr Lorna McHattie (both who have had a lobular breast cancer diagnosis) are conducting research to find out what are the most important concerns for people diagnosed with lobular breast cancer in the UK. They are working with health psychologists Dr Kerry Quincey and Dr Iain Williamson at De Montfort University in Leicester.

You can get involved if you are at least 3 months past your initial diagnosis, were or are being treated in the UK, are over 18 years of age and can respond online.

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Lobular Breast Cancer UK is a registered charity in England and Wales No. 1191402 Registered office: Flat 3 Beech House, 77 Edge Lane, Stretford, Greater Manchester M32 8PA