Working together we can all live well
Working together we can all live well
We work to save more lives by unlocking the challenge that is Lobular Breast Cancer
Not Always a Lump
Due to its unique growth pattern, Lobular Breast Cancer rarely forms a lump, making it hard to detect on scans.
Despite making up 15% of all breast cancers diagnosed, Lobular is under-studied and rarely recognised as a distinct and different disease.
What we do
We are patients, advocates, scientists, family members, friends, and volunteers who are united by a common goal: to change the landscape for Lobular Breast Cancer in the UK.
Together we are are working to:
- raise knowledge and understanding of Lobular Breast Cancer
- advocate for more research into this distinct disease
- provide women with the knowledge and tools to advocate for themselves
- ensure earlier and more accurate detection
- change the treatment guidelines so that Lobular is treated as a distinct disease
Information and Resources
Find reliable information and practical resources to help you better understand Lobular Breast Cancer.
Our free downloads are designed to support patients, families, and healthcare teams at different stages of diagnosis and treatment.
All resources are free to download and share.
Latest News
Latest LBCUK news roundup
Last Monday, LBCUK interim CEO Claire Turner and Trustee and Co-chair Emma Amos attended the All Party Parliamentary Group (APPG) for Breast Cancer where they joined patient advocates, clinicians and parliamentarians to discuss the government’s new Cancer Plan. There...
Medical Research Council funding for Lobular research
Building on our work with the National Institute for Health and Care Research (NIHR) to increase clinical research into Lobular, we've also been collaborating with the Medical Research Council (MRC), a non-departmental public body sponsored by the Department for...
Esteemed Lobular researcher Professor Val Brunton retires
Val’s work in Lobular Breast Cancer began when she moved to the University of Edinburgh in 2007, following discussions with Professor David Cameron, a medical oncologist with a strong interest in Lobular. He encouraged Val to pursue research in this area, which...
Our Lobular Stories
Ruth shares her experience of dealing with a Secondary Lobular Breast Cancer diagnosis
Susan was diagnosed with Stage 3 HER2+ Pleomorphic Lobular Breast Cancer
Elaine was diagnosed with Lobular Breast Cancer in 2020 at the age of 38
together we can do so much”
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