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Latest LBCUK news roundup

Latest LBCUK news roundup

Last Monday, LBCUK interim CEO Claire Turner and Trustee and Co-chair Emma Amos attended the All Party Parliamentary Group (APPG) for Breast Cancer where they joined patient advocates, clinicians and parliamentarians to discuss the government’s new Cancer Plan. There...

Medical Research Council funding for Lobular research

Medical Research Council funding for Lobular research

Building on our work with the National Institute for Health and Care Research (NIHR) to increase clinical research into Lobular, we've also been collaborating with the Medical Research Council (MRC), a non-departmental public body sponsored by the Department for...

Esteemed Lobular researcher Professor Val Brunton retires

Esteemed Lobular researcher Professor Val Brunton retires

Val’s work in Lobular Breast Cancer began when she moved to the University of Edinburgh in 2007, following discussions with Professor David Cameron, a medical oncologist with a strong interest in Lobular. He encouraged Val to pursue research in this area, which...

Congratulations to Ben, our first ever London Marathon runner

Congratulations to Ben, our first ever London Marathon runner

Ben registered his interest last year for one of our London Marathon places and was successful in his application. With personal experience of Lobular Breast Cancer, Ben wanted to run for LBCUK to raise knowledge and funds to support our work. He was inspired by his...

LBCUK’s first MP drop-in is a success

LBCUK’s first MP drop-in is a success

On Wednesday 4 March 2026, LBCUK staff, trustees, patient advocates and researchers hosted an MP drop-in at Portcullis House in Westminster. The Rt Hon Helen Hayes, MP for Dulwich and West Norwood, sponsored the event and was the first to drop in and see us. Helen’s...

Ben raises over £13,600 from Brighton Half Marathon

Ben raises over £13,600 from Brighton Half Marathon

Ben's wife Annabel was diagnosed with Lobular Breast Cancer a year after she was told her lumps were fibrous cysts at her initial scan. Annabel is currently undergoing treatment but she is back at work, teaching, and doing really well.On 1 March Ben took on the...

Run the 2027 London Marathon for LBCUK

Run the 2027 London Marathon for LBCUK

The TCS London Marathon is one of the most prestigious marathons in the world - would you like the opportunity to run for LBCUK? Our Interim CEO Claire Turner will be taking on the London Marathon on 25 April 2027 to raise funds for LBCUK and we're looking for two...

Introducing our #DistinctlyLobular campaign

Introducing our #DistinctlyLobular campaign

Currently, Lobular Breast Cancer is barely reflected in UK national treatment guidelines for breast cancer. It’s only mentioned once in the guidelines, and that is a recommendation for a pre-surgical MRI scan to determine tumour size before surgery. We aim to change...

LBCUK to host MP Drop In on 4 March 2026

LBCUK to host MP Drop In on 4 March 2026

As part of our #DistinctlyLobular campaign, we're hosting a Parliamentary Drop-in on Wednesday 4th March 2026.  We need as many MPs to attend as possible so we're asking you to help us by emailing your MP to urge them to attend. We want all MPs to understand that...