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Primary Care Education webinar on Lobular Breast Cancer
In March, Fiona Barber, who has had a Lobular Breast Cancer diagnosis, and is a retired GP and a member of our GP Working Group, attended the Hampshire and Isle of Wight Primary Care Cancer conference. As part of our #DistinctlyLobular campaign, we had a stand and...
Join our SheUltra 2027 team
We are proud to have partnered with SheUltra, the world's largest women-only ultra marathon event! We've been offered 15 places to represent the 15% of people diagnosed with Lobular Breast Cancer. It takes place on Saturday 17 April 2027 and starts and ends in...
Kristen’s story: My partner noticed something that would change my life
Kristen is 39 and lives in Denver, Colorado, with her fiance Josh. In January 2023, my partner Josh noticed something that would change my life forever. While I was changing, he noticed an indent on my breast. I had never seen it before and the first thing I did was...
First Steering Group meeting of the James Lind Alliance PSP
On Thursday 18 June, we hosted the first meeting of the James Lind Alliance Priority Setting Partnership – Unlocking Lobular. We are delighted to be working with our new Steering Group, which involves people with lived experience of a Lobular diagnosis, alongside...
“I found out through my histology report that I had Lobular.”
Brian is 62 and lives in Newcastle upon Tyne. He has been involved with The Men’s Virtual Meet Up (VMU), which is a monthly virtual meet-up for men with breast cancer, since 2024. Whilst we know Lobular is rare in men, each year there are around 8 men being diagnosed...
Latest LBCUK news roundup
Last Monday, LBCUK interim CEO Claire Turner and Trustee and Co-chair Emma Amos attended the All Party Parliamentary Group (APPG) for Breast Cancer where they joined patient advocates, clinicians and parliamentarians to discuss the government’s new Cancer Plan. There...
Medical Research Council funding for Lobular research
Building on our work with the National Institute for Health and Care Research (NIHR) to increase clinical research into Lobular, we've also been collaborating with the Medical Research Council (MRC), a non-departmental public body sponsored by the Department for...
Esteemed Lobular researcher Professor Val Brunton retires
Val’s work in Lobular Breast Cancer began when she moved to the University of Edinburgh in 2007, following discussions with Professor David Cameron, a medical oncologist with a strong interest in Lobular. He encouraged Val to pursue research in this area, which...
Congratulations to Ben, our first ever London Marathon runner
Ben registered his interest last year for one of our London Marathon places and was successful in his application. With personal experience of Lobular Breast Cancer, Ben wanted to run for LBCUK to raise knowledge and funds to support our work. He was inspired by his...








