Information & Resources

Information

At LBCUK we want everyone to be able to be their own best advocate. We want you to understand your disease, so that you are able to ask for the information and treatment that is right for you.

Across our website and publications you can read and download accurate and up-to-date information about Lobular Breast Cancer, to help increase your knowledge. There are also resources you can download below.

As we learn more about the needs of people with a Lobular diagnosis, family and friends and medical professionals, we will produce materials that meet these needs and answer any questions. If you have any thoughts about what you want to see or would like us to be doing, please contact us.

Follow our social media channels where we will be providing workshops, information films and more.

Resources You Can Download

The items below provide information that you can read when you are ready to learn more about Lobular Breast Cancer or that you can also share with your medical team. There is also a template letter for requesting on-going MRI monitoring.

This excellent leaflet produced by the European Lobular Breast Cancer Consortium provides a great introduction if you have just been diagnosed or know little about Lobular Breast Cancer.

If your primary tumour(s) were completely or partially missed on mammogram, this downloadable template helps you to construct a letter to your medical team asking for annual MRI monitoring following surgery. It has worked for many people despite initially being told no.

Developed by abc diagnosis founder and patient advocate Jo Taylor, this excellent resource approved by NHS England, indicates where Lobular Breast Cancer can potentially spread to around the body, and describes the warnings signs & symptoms to look out for.

Treatment Support Digital Postcards

At LBCUK, we have developed a  series of digital postcards created with Lobular patients, health psychologists at De Montfort University & patient advocate Jo Taylor from abc diagnosis.

You can print off or download each digital postcard to your mobile/tablet. Each card provides support during different stages of primary Lobular Breast Cancer treatment, and the At Diagnosis card is also useful for individuals with a secondary diagnosis. One side of the card includes things you might like to know about your stage of diagnosis and treatment, and the other side includes some suggested questions you might like to ask your medical team.

A big thank you to De Montfort University and the National Lottery Community Fund Awards for All programme for funding the work.

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Lobular Breast Cancer UK is a registered charity in England and Wales No. 1191402 Registered office: 83 Ducie Street, Manchester M1 2JQ