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The latest news
Lobular Breast Cancer UK attends Westminster Hall debate on the treatment of Lobular Breast Cancer
On Tuesday 10 December, Elaine Nangle and Emma Amos, two of our LBCUK Trustees, attended the Westminster Hall debate on the treatment of Lobular Breast Cancer led by Helen Hayes MP. Elaine and Emma were there to represent LBCUK and to put forward our questions to the...
Lobular research from the International ILC Symposium 2024
Lobular patient advocate and science writer Diane Mapes shares the latest research from this year's International ILC Symposium. Imagine going through years of clear mammograms only to discover you’ve been diagnosed with a late-stage breast cancer you’ve never heard...
Let’s change treatment guidelines together for Lobular patients!
Let's change breast cancer guidelines and get the most effective treatments for Lobular patients. Can you help us by completing a Lobular patient survey to start our treatment guidelines campaign? In the UK, the National Institute for Health & Care Excellence...
New free resources for conversations with your medical team
Working with Lobular patients, patient advocate Jo Taylor from abcdiagnosis and health psychologists at De Montfort University (DMU), we've created a series of four downloadable 'digital postcards' to help you when having conversations with your medical team. The...
Potential new targets found in aggressive Lobular cancer tumours
Partnering with health professionals and researchers is central to the work we do at LBCUK from identifying and developing the research, ensuring the inclusion of the patient voice and dissemintating the latest reseach findings. We were delighted to receive this...
“I had no symptoms at all when diagnosed with Lobular”
"Without family and friends, this experience would have been very difficult", says Anwen (pictured centre) about her Lobular Breast Cancer diagnosis. "I'm doing well but didn't realise how difficult everyday tasks could be without a breast as simple tasks can be...
Working with advocates has made me a better scientist
When I started my PhD at the University of Edinburgh in Professor Val Brunton’s group in 2019 I was only just beginning to understand that breast cancer was more than one disease. It wasn’t until I actually applied for my PhD that I’d ever even heard of Lobular Breast...
Discover the latest global Lobular science & research
Discover the latest Lobular Breast Cancer science and research from this year's International Invasive Lobular Cancer (ILC) Symposium. Over 200 clinicians, researchers and patient advocates attended the three day event in Pittsburgh sharing knowledge, understanding...
Vikki does a hop & a skip for Lobular on a fire walk
“I had Lobular that was totally clear on the mammogram and the ultrasound. Also I had it in my lymph nodes which was not detected. Quite shocking when it was 8cm x 7cm” Vikki Groom, single mum of girls Dacey and Lucia, had just started a new job when she was diagnosed...
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