Are you a woman diagnosed with Lobular Breast Cancer?
In partnership with the University of Aberdeen, we are conducting a research study to understand the emotional and informational needs of women with Lobular Breast Cancer and how these needs can be supported through online resources, online support groups and chat forums.
At LBCUK, we are receiving requests to develop more opportunities to gain support and to meet up in online settings. To meet this need, we want to ensure that we are providing services that will be of most benefit to you and what you want. We need to be really clear that it’s of benefit for the patient and of real use. This study is not simply academic research. We will be using the findings to improve the support we provide at LBCUK for patients online.
The survey will take about 15 – 20 minutes to complete and the deadline is 30 June 2025.
Who can participate?
- Women diagnosed with Lobular Breast Cancer
- Aged 16+ and living in the UK
- Comfortable completing a short online survey
Why should you take part?
Lobular Breast Cancer is unique, and we want to understand how you use online resources, online support groups and chat forums to cope, connect, and find reliable information. Your experiences will help us to shape future support, ensuring women like you get the right emotional and practical help when it matters most. We will also share the findings from the survey once they are published.
Your privacy comes first
Participation is completely voluntary, and you can stop at any time. All responses will be anonymous—no one will know it’s you. Data will be stored securely and only used for this study, following UK data protection laws (GDPR).
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