Advocates, clinicians, influences and researchers are invited to participate in a survey focused on Invasive Lobular Breast Cancer (ILC) which was developed by an international group of researchers, clinicians and breast cancer advocates, including members of LBCUK. 

It takes about 10 – 15 mins to complete and responses are needed for the 30 April 2022.  You can find the survey here

The goal of the work is to understand current knowledge about ILC and identify potential priority areas for future research. You only need to complete the survey once and all response will be included, even if you don’t answer every question.

If you have any questions about the survey, you can contact Dr Steffi Oesterrich at or Dr Christine Desmedt at

Questions from patients and advocates can be sent to us here at LBCUK on

We are delighted to be part of this global alliance to furthering research into lobular breast cancer.