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Ben raises over £13,600 from Brighton Half Marathon
Ben's wife Annabel was diagnosed with Lobular Breast Cancer a year after she was told her lumps were fibrous cysts at her initial scan. Annabel is currently undergoing treatment but she is back at work, teaching, and doing really well.On 1 March Ben took on the...
Run the 2027 London Marathon for LBCUK
The TCS London Marathon is one of the most prestigious marathons in the world - would you like the opportunity to run for LBCUK? We've got two Silver Bond places if you'd like to apply to join #TeamLBCUK.Congratulations and 'thank you' to Ben Richardson, our first...
Introducing our #DistinctlyLobular campaign
Currently, Lobular Breast Cancer is barely reflected in UK national treatment guidelines for breast cancer. It’s only mentioned once in the guidelines, and that is a recommendation for a pre-surgical MRI scan to determine tumour size before surgery. We aim to change...
LBCUK to host MP Drop In on 4 March 2026
As part of our #DistinctlyLobular campaign, we're hosting a Parliamentary Drop-in on Wednesday 4th March 2026. We need as many MPs to attend as possible so we're asking you to help us by emailing your MP to urge them to attend. We want all MPs to understand that...
Take part in our 2025 Impact Survey
As a volunteer and patient-led charity, it is so important that we are delivering the right things for people affected by Lobular Breast Cancer. We want to know how we did last year, what we are getting right, what we can do better, and what you'd like us to start...
Where to find support over Christmas
We wish you all a peaceful Christmas Christmas is a wonderful time to get together with loved ones and celebrate the holidays. But it can also be stressful, difficult and emotional when you're living with cancer. We wish you all a peaceful Christmas. Our Christmas and...
NIHR issues Highlight Notice for Lobular Breast Cancer Research
We've recently been working with the National Institute for Health and Care Research (NIHR) on ensuring that the patient voice is included in their new highlight notice for Lobular Breast Cancer. What does this mean and why is it important? NIHR funds millions of...
Lisa’s Lobular story: “I look back on my experience so far and wish there was more understanding about Lobular Breast Cancer.”
Lisa is 49 years old and lives in the West Midlands. She has been married for 25 years and has two sons aged 18 and 22. I used to work as a Teaching Assistant but became a stay-at-home mom after the birth of my first son. But for the last 4 years, I’ve been working as...
LBCUK releases first-ever NHS England statistics on Lobular Breast Cancer
Today we have produced 2022 data from NHS England on Lobular Breast Cancer. This is the first time that a Lobular-specific data report has been published - in any part of the UK. We collaborated with the National Disease Registration Service (NDRS) to produce this...