Our Stories
Our Stories
At Lobular Breast Cancer UK we work to ensure that anyone diagnosed with lobular breast cancer lives, and lives well.
As people diagnosed with lobular breast cancer, we all have a different story to tell. Hear some shared personal experiences of living with a lobular breast cancer diagnosis.
But we don’t work in isolation at LBCUK. Only by working together can we make real changes and we are joined by our medical and scientific advisors, family and friends who support us and all of our volunteers.
Our History
Following a diagnosis of Lobular Carcinoma in Situ (LCIS), a risk marker for breast cancer, in 2014 and invasive Lobular Breast Cancer in 2017, Claire Turner, our Founder and Chair, couldn’t find any information about Lobular Breast Cancer in the UK and there seemed to be little understanding of the disease.
Who We Are
Trustees & Founder members
As people diagnosed with Lobular Breast Cancer, we all have a different story to tell. Our Trustees and founders have shared their personal experiences of living with a Lobular Breast Cancer diagnosis. You can read about our individual experiences below.
Patrons
Josie Lloyd
About me
Dame Martina Milburn
About me
Trustees & Founders
Emma Amos
Read my story
Anne Carey
Read my story
Helen Coulthard
Read my story
Sara MacLennan
Read my story
Elaine Nangle
Read my story
Hannah Phillips
Read my story
Jane Sedcole
Read my story
Claire Turner, Chair
Read my story
Non-Trustee Founders
Danni Buck
Read my story
Darlaine Honey
Read my story
Lorna McHattie
Read my story
Kristin Spencer
Read my story
Ruth Warden
Read my story
Scientific & Medical Advisory Group
One of the key challenges that we face is improving understanding, diagnosis, treatment and long-term survival for Lobular Breast Cancer. To make these changes, we require a significant amount of scientific, medical and research input and knowledge.
Our Scientific and Medical Advisors provide advice, guidance, information and help in this area. Our long term ambition is to work with them as partners in developing Lobular specific research programmes that meet the concerns and issues facing patients.
Remembering Dr Andy Sims
We want to remember Dr Andy Sims, one of our first Scientific Advisors, a highly-respected breast cancer researcher and lovely man, who sadly died of cancer in May 2021.
Dr Andy Sims
Learn more
Professor Val Brunton
View my bio
Dr Soujanya Gadde
View my bio
Lottie Milns
View my bio
Sankari Nagarajan
View my bio
Dr Alicia Okines
View my bio
Professor Elinor Sawyer
View my bio
Our Partners
Supporters
Our supporters have helped us to develop as a charity during our early days by providing resources, knowledge and skills. We have also received support from a number of individuals who have donated towards the charity. We want to say a huge thank you to each of them.
Individual Supporters
Marge Bradshaw Catriona McHattie
Pauline & Vic Smith Jacqui Taylor
Liz and Derek Turner Billy Ward
Lobular Breast Cancer UK is a registered charity in England and Wales No. 1191402 Registered office: 83 Ducie Street, Manchester M1 2JQ